Blog Post; February 2018

  • 13th Australasian CHARGE Syndrome Conference

25-27 May 2018 – Melbourne

Conference Flyer

CHARGE Conference more information


  • Jeremy the Dudd

Jeremy the Dud is a short film that lifts the lid on disability, and creates substantial awareness in a meaningful and funny way.


  • Apply now for a Churchill Fellowship
    Travel overseas to investigate inspiring practices that will benefit Australian communities on a Churchill Fellowship!

This prestigious award offers Australian citizens the opportunity to travel overseas to investigate a topic or an issue they are passionate about. It is for anyone who, after examining alternatives within Australia, would now like to see what other countries are doing successfully in a similar field to inspire new ideas and innovation.

The Churchill Fellowship is awarded to more than 100 Australians each year, enabling them to travel to countries around the world to meet and work with leaders, influencers and innovators that will see them gain knowledge and experience for the betterment of themselves, their industry or community and Australia. More information


  • OMAA News: February Edition

News from around the world on blindness and low vision:


  • Suck it Up Buttercup

Video posted by David Whitney on the Retinitis Pigmentosa Support Group (The RP Family Group) Facebook page:

David Whitney – 5 January 2018

“Every once in a while I write a response to someone’s post in this group. I’m not sure that people always read them, but that’s ok. I just like to educate when I can and try to cheer people up.

Someone in this group told me that I should post a video that encourages people to NOT be afraid/ashamed/embarrassed/etc. to utilize their white canes. I know it takes some time and effort to adjust to it, but I personally can’t stand pity parties – nor enabling! I just can’t. How can people say they want to be independent, but then their spouses and/or children post on this message board searching for ways to “encourage” them or come up with some nice, friendly way to prod or coax them to use their white cane. It’s NOTHING to be ashamed of. Nothing at all.

So anyway, I decided to follow this person’s (who shall apparently remain nameless) suggestion, and simply posted a video expressing my feelings about the topic.

It’s pretty long, but some of you (or your loved ones) probably need to watch it–at least skip through it. (Yes, there is a little humor thrown in throughout, but it’s not meant to be a comedy.)

And, for people who are dealing with the frustration and depression that can accompany RP, there is even a little “pick me up” song during the final 3 or 4 minutes.

Anyway–SUCK IT UP, BUTTERCUP! (And share this post with anyone you can think of who might benefit from it.)

– just a Cheesehead in Paradise who is livin’ the dream (even with RP)…”

Watch the video here